Worldwide survey seeks MS answers

Women are twice as likely as men to develop MS

A major new study that hopes to answer key questions about the neurological disease multiple sclerosis (MS) is being unveiled on Thursday.

This first worldwide study is the work of the WHO and the Multiple Sclerosis International Federation (MSIF).

It remains unclear what causes MS but the study says there may be many more sufferers than the estimated 1.3m.

Survey organizers urge governments to invest more in education and services to improve sufferers’ quality of life.

Specialist equipment

MS is a degenerative disease of the central nervous system. It typically emerges in young adults and can lead to severe disability.

Symptoms often include aching, loss of balance, muscle spasm and paralysis and general fatigue.

But there are still many mysteries surrounding MS.

It is not clear what causes it or why women are twice as likely as men to develop it. Or why it is so much more common in colder countries than warmer ones.

There must be many people out there who we just don’t know about Peer Baneke, MSIF

The study has found that although most cases occur in the developed world, every country that took part in the survey, rich or poor, had some instances.

Peer Baneke, the chief executive of the MSIF, says the rough estimate of 1.3m cases worldwide is probably a big underestimation.

“The diagnosis of multiple sclerosis is very difficult,” he said. “You really need neurologists who have the knowledge to distinguish it from other things.”

It also needs specialist equipment which poorer health systems simply cannot access. MRI scanners, for example, are in short supply in the developing world.

“There must be many people out there who we just don’t know about,” said Mr Baneke.

Stigma

The survey also looks at the experiences of people with MS. In many countries, they face stigma and misunderstanding.

Kanya Puspokusumo, a 36-year-old Indonesian, was diagnosed in 2001.

She said that some people thought MS was similar to Aids. Even though she explained it was not transmitted from one person to another, many still excluded her socially.

Dr Hithaishi Weerakoon is a doctor in Sri Lanka who was diagnosed with MS more than a decade ago.

Many families do not acknowledge MS, she says, and keep affected family members hidden away.

Others say, wrongly, that it has developed as a condition because of sins in a past life.

Those associated with the study say this is an important start – but that far more research needs to be done, especially in developing countries where the process of identifying cases systematically and collecting data is still at a very early stage.

Website maps surnames worldwide

There are more Beckhams in the United States than Britain

A website which maps global surnames has been launched to help people find the origins of their name and how far it may have spread.

The Public Profiler site plots eight million last names using data from electoral rolls and phone directories.

The site covers 300 million people in 26 countries, showing the origins of names and where families have moved to.

David Beckham, for example, has an English name, but there are more Beckhams in the US than Britain.

But the region of the world with the highest concentration of people called Beckham was even further from the footballer’s east London origins – in the New Zealand province of Northland.

The site – http://www.publicprofiler.org/worldnames – also reveals which of the five million forenames are most closely associated with different surnames and lists the top regions and cities for each surname.

A name is now not just a statement of who you are but where you are Professor Paul Longley

It was developed by a team of geographers from University College London.

Professor Paul Longley, one of the researchers, said: “The information is not just historical but geographical.

“We can link names to places – a name is now not just a statement of who you are but where you are.”

Most surnames originated in specific places in the world and remain most frequent in those areas, but have often spread to other countries because of migration, the research showed.

Searches for Britain’s three multi-gold medallists at the recent Olympics and the leaders of the three main political parties revealed some mixed results.

• Swimmer Rebecca Adlington’s surname is most prevalent in New Zealand

• Cyclist Chris Hoy’s surname is Irish but more common in Denmark

• Cyclist Bradley Wiggins’s surname is most popular in the US

• Prime Minister Gordon Brown’s surname tops the list in Australia

• Conservative leader David Cameron’s surname is most prevalent in New Zealand

• Liberal Democrat leader Nick Clegg’s surname is still most common in Britain

Prof Longley said that the site was currently struggling to cope with demand.

“We are being deluged with requests and we ask people to be patient. There is obviously a lot of interest in family names and family history globally,” he said.

Bank customer data sold on eBay

eBay was first launched as Auction Web in 1995

An investigation is under way into how a computer containing bank customers’ personal data was sold on an internet auction site.

The PC, which was reportedly sold for £35 on eBay, had sensitive information on the hard drive.

The Royal Bank of Scotland (RBS) and its subsidiary, Natwest, have confirmed their customers’ details were involved.

RBS says an archiving firm told it the PC had apparently been “inappropriately sold on via a third party”.

It said historical information relating to credit card applications for their bank and others had been on the machine.

The information is said to include account details and in some cases customers’ signatures, mobile phone numbers and mothers’ maiden names.

RBS and Natwest – two of the three businesses involved – said they are taking the issue very seriously and are working to resolve it “as a matter of urgency”.

A spokeswoman for data processing company Mail Source, which is part of the archiving firm Graphic Data, said it was investigating how the computer equipment had been removed from a secure location.

“The IT equipment that appeared on eBay was neither planned nor instructed by the company to be disposed.”

Clearly such details should never have been included in the hard drive of the computer offered for sale on eBay eBay spokesman When financial data goes missing

She said the incident was extremely regrettable and the firm was “taking every possible step” to retrieve the data and ensure it was an isolated incident.

It is thought the problem came to light when Andrew Chapman, an IT manager from Oxford, bought the computer, noticed the data and raised the alarm.

The Daily Mail said the computer, containing a million bank customers’ personal data, had been sold for £35.

A spokesman for eBay said they were currently looking into what had happened.

“Clearly such details should never have been included in the hard drive of the computer offered for sale on eBay. We fully expect Mr Chapman to hand it back to Graphic Data as soon as possible. We will of course work with Graphic Data to establish how it came to be available for sale on our site.”

Banks have an obligation under the Data Protection Act to keep all personal information secure.

Last year the Financial Services Authority fined the Nationwide Building Society £980,000 for a security breach, after a laptop containing customer data was stolen from an employee’s home.

Search for clues in Madrid crash

Search for clues in Madrid crash

Examination of the wreckage began the morning after the crash

Accident investigators have begun examining the wreckage of a plane that crashed at Madrid’s Barajas airport, leaving 153 passengers dead.

They will also start to analyze the flight data and voice recorders, which have both been recovered.

Three days of official mourning have been declared in Madrid, as relatives arrive at a makeshift mortuary in the capital to identify bodies.

Nineteen people survived the crash and several are critically hurt.

Of the 19 survivors of Spanair flight JK 5022, four are listed as being in a “very serious” condition, with another six only slightly better, Spain’s El Pais newspaper reported on Thursday. Eight remain under observation with one only slightly injured, the newspaper said.

The worst is the identification of the bodies. It is the end of all hope Jesus Lopez Santana Spanish Red Cross

Spanish Prime Minister Jose Luis Rodriguez Zapatero is expected to visit the injured in Madrid’s hospitals, while King Juan Carlos will visit Barajas airport.

The king is also likely to visit anxious families waiting for the grim confirmation that their loved-ones are among the dead.

Experts at a temporary mortuary near the airport say work to identify the dead is likely to be slow and painstaking, as many of the bodies were badly burned in Wednesday’s inferno.

“The worst is the identification of the bodies,” Red Cross spokesman Jesus Lopes Santana told the El Mundo newspaper.

“It is the end of all hope and when we see the worst scenes, because the majority of the relatives break down when they hear the news.”

The Spanair flight, bound for Las Palmas in the Canary Islands, took off on Wednesday lunchtime with 172 people on board, among them 10 crew.

Initial reports suggested that a fire had broken out in one of the MD82 plane’s engines during or shortly after take-off, and the plane ended up in a field.

Spanish Transport Minister Magdalena Alvarez said the plane had earlier begun taxiing to the runway, before turning back because of a technical problem, which had caused an hour’s delay in the take-off.

Spanish media said the pilot had reported a fault with a temperature gauge, but it was thought to have been fixed.

Speaking on Thursday, Ms Alvarez said a thorough investigation would be carried out, with a full examination of the flight recorders and available pictures, but that it was very early to draw conclusions about the crash.

A special independent commission has been established to probe the cause of the crash, Spanish media reported.

Anger

Spanair has released the official passenger manifest, confirming reports that 20 children and two babies were on board the plane.

Among those who survived were three children, aged six, eight and 11, reports said. At least one of the 19 survivors has yet to be identified.

Overnight a long convoy of black hearses rolled out of the airport grounds to carry bodies to the makeshift mortuary, where the victims’ relatives had gathered, some of whom had traveled from the Canary Islands.

The convention center on the outskirts of the capital was also used as a mortuary after the Madrid train bombings four years ago.

Many of the relatives have expressed anger and disgust at Spanair, blaming it for the accident.

He says the injured include a young brother and sister, who immediately asked rescue workers about their parents.

Spanish ministers said foul play had been ruled out and the crash was considered to be an accident.

The 15-year-old plane had passed a safety inspection in January, said Sergio Allard, a spokesman for Spanair, which is owned by Scandinavian firm SAS.

Spanish media said some German, Swedish, Chilean and Colombian nationals had been among the passengers.

‘All destruction’

Spanish Prime Minister Jose Luis Zapatero cut short his holiday in the south of the country to visit the scene of the crash.

A convoy of hearses removed bodies from the scene of the crash

Speaking at the airport, he said that “the government is overwhelmed, very affected, as are all Spanish citizens, by this tragedy”.

Television images on Wednesday showed plumes of smoke rising over the field in which the remains of the plane were resting.

Emergency services chief Ervigio Corral said that rescue workers had been faced with “a desolate scene”.

“You couldn’t distinguish that there was an aircraft there apart from the remains of the tail,” he said. “There was nothing of fuselage.”

Another rescue worker, Pablo Albella, told AP news agency: “The fuselage is destroyed. The plane burned. I have seen a kilometer of charred land and few whole pieces of the fuselage. It is all destruction.”

Messages of sympathy have been sent to Spain by leaders around the world.

The presidents of Russia, France and Italy, Germany’s chancellor and Britain’s queen joined with Latin American leaders in sending their condolences.

It was the deadliest air accident in Spain since a Colombian airline’s Boeing 747 crashed in Madrid in 1983 killing 181 people.

People concerned for relatives or friends who might have been on board the plane can call Spanair’s helpline on +34 800 400 200 (calls possible from inside Spain only).

MD82 AIRCRAFT Passengers 150-170 Cruise speed 504mph (811km/h) Length 45.1m (148ft) Height 9m (29.5ft) Wing-span 32.8m (107.6ft) Maximum range 2,052 nautical miles (3,798km)

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Russia rejects UN Georgia draft

Russia paraded captive Georgians on armoured vehicles

Russia has rejected a draft UN Security Council resolution on Georgia, saying it contradicted the terms of last week’s ceasefire deal.

The draft text called on Russia to pull back its forces to the positions held before the current conflict.

But Russia says the truce allows its troops to stay in a buffer zone on the Georgia side of South Ossetia’s border.

Moscow earlier dismissed a NATO warning that normal relations were impossible while its troops remained in Georgia.

The conflict broke out on 7 August when Georgia launched an assault to wrest back control of the Moscow-backed breakaway region of South Ossetia, triggering a counter-offensive by Russian troops who advanced beyond South Ossetia into Georgia’s heartland.

Georgia says its action was in response to continuous provocation.

UK Foreign Secretary David Miliband, who is visiting the region, is to visit a camp for displaced people in Georgia on Wednesday. Tens of thousand of people have been made homeless by the recent conflict.

PEACE PLAN No more use of force Stop all military actions for good Free access to humanitarian aid Georgian troops return to their places of permanent deployment Russian troops to return to pre-conflict positions International talks about security in South Ossetia and Abkhazia

On Tuesday, Mr Miliband held talks with Georgian President Mikhail Saakashvili in the Georgian capital, Tbilisi, to update him on Nato’s reaction at an emergency meeting of foreign ministers in Brussels which demanded that Russia pull its troops out of Georgia.

The foreign secretary criticised Russia’s failure to keep to a promise to withdraw troops from Georgia.

Meanwhile, a Russia’s main security service, the FSB, says a Russian officer has been detained accused of spying for Georgia.

An ethnic Georgian, Mikhail Khachidze was arrested in the southern Russian region of Stavropol near Georgia, an FSB spokesman said.

“[He] was involved in collecting secret information on Russian armed forces, its combat readiness as well as data on other servicemen,” he said.

Russian veto

At the UN, Russia’s ambassador said the French-drafted UN resolution went against the terms of the ceasefire brokered by France’s President Nicolas Sarkozy.

Vitaly Churkin said the resolution should incorporate all elements of the six-point peace plan agreed last week.

He also objected to language in the draft reaffirming Georgia’s territorial integrity, saying South Ossetia and Abkhazia did not want to be part of Georgia.

Russia can veto UN resolutions and the ambassador told the BBC that putting the text to a vote would be pointless.

He said: “It’s a waste of time because the process of the withdrawal of Russian forces will continue.”

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Following a rebuke from Nato’s 26 foreign ministers in Brussels, Moscow accused NATO of bias in favor of the “criminal regime” in Tbilisi.

US Secretary of State Condoleezza Rice said Russia risked becoming the “outlaw” of the conflict, in an interview with CBS news on the sidelines of the NATO emergency meeting.

Russia says President Dmitry Medvedev told President Sarkozy that by Friday, Russian troops would either be sent home, be pulled back to South Ossetia or to a buffer zone along the border.

Russia said it had begun a pullback on Tuesday as it withdrew 11 military vehicles from the Georgian town of Gori.

A Russian officer told reporters invited to watch that the column was heading for South Ossetia and then home to Russia, but Georgia dismissed it all as a show.

Correspondents there say there are still several artillery positions and checkpoints in Gori.

And the operators of the Georgian Black Sea port of Poti told the BBC that Russian forces had seized the commercial harbour.

In an apparent goodwill gesture on Tuesday, the two sides exchanged prisoners at a checkpoint near Tbilisi, but on the same day Russia paraded captive Georgians on armored vehicles.